Mitundu / ubongo / wodwala / mwana-cns-atrt-treatment-pdq

Childhood Central Nervous System Atypical Teratoid / Rhabdoid Tumor Treatment (®) -Patient Version

Zambiri Zokhudza Ubwana Central Nervous System (CNS) Atypical Teratoid / Rhabdoid Tumor

MFUNDO ZOFUNIKA

• Mitsempha ya chapakati yotupa ya teratoid / rhabdoid chotupa ndi matenda omwe ma cell owopsa (khansa) amapangidwa m'matumba a ubongo.

• Kusintha kwina kwa majini kumatha kuwonjezera chiopsezo cha chotupa cha teratoid / rhabdoid.

• Zizindikiro za chotupa cha teratoid / rhabdoid sichofanana ndi wodwala aliyense.

• Kuyesa komwe kumayesa ubongo ndi msana kumagwiritsidwa ntchito kuti mupeze (kupeza) chotupa cha CNS chodziwika bwino cha teratoid / rhabdoid.

• Chotupa cha ana atypical teratoid / rhabdoid chimapezeka ndipo chimatha kuchotsedwa mu opaleshoni.

• Zinthu zina zimakhudzanso madandaulo (mwayi wochira) ndi njira zamankhwala.

Mitsempha ya chapakati yotupa ya teratoid / rhabdoid chotupa ndi matenda omwe ma cell owopsa (khansa) amapangidwa m'matumba a ubongo.

Central nervous system (CNS) atypical teratoid / rhabdoid chotupa (AT / RT) ndi chotupa chosowa kwambiri, chofulumira chaubongo ndi msana. Nthawi zambiri zimachitika kwa ana azaka zitatu kapena kupitilira apo, ngakhale zimatha kuchitika kwa ana okalamba komanso achikulire.

Pafupifupi theka la zotupazi zimapangidwa mu tsinde la ubongo kapena ubongo. Cerebellum ndi gawo laubongo lomwe limayendetsa kayendedwe, kulimbitsa thupi, ndi kukhazikika. Ubongo umayang'anira kupuma, kugunda kwa mtima, komanso mitsempha ndi minofu yomwe imagwiritsidwa ntchito pakuwona, kumva, kuyenda, kulankhula, ndi kudya. AT / RT imapezekanso m'malo ena amkati mwa ubongo (ubongo ndi msana).

Anatomy yaubongo. Dera la supratentorial (kumtunda kwaubongo) limakhala ndi cerebrum, lateral ventricle ndi third ventricle (yokhala ndi cerebrospinal fluid yowonetsedwa mu buluu), choroid plexus, pineal gland, hypothalamus, pituitary gland, ndi optic nerve. Malo am'mbuyo a fossa / infratentorial (mbali yakumbuyo kwakubongo) imakhala ndi cerebellum, tectum, ventricle yachinayi, ndi tsinde laubongo (midbrain, pons, and medulla). The tentorium imasiyanitsa supratentorium ndi infratentorium (kumanja). Chigaza ndi meninja zimateteza ubongo ndi msana (kumanzere).

Chidule ichi chikufotokozera chithandizo cha zotupa zoyambira muubongo (zotupa zomwe zimayamba muubongo). Chithandizo cha zotupa zamaubongo zam'mimba, zomwe ndi zotupa zopangidwa ndi ma cell a khansa omwe amayambira mbali zina za thupi ndikufalikira kuubongo, sizinafotokozedwe mwachidule. Kuti mumve zambiri, onani chidule cha pa Ubongo wa Ana ndi Spinal Cord Tumors Treatment mwachidule zamitundu yosiyanasiyana yaubongo waubwana ndi zotupa za msana.

Zotupa zamaubongo zimatha kupezeka mwa ana ndi akulu omwe; komabe, chithandizo cha ana chikhoza kukhala chosiyana ndi chithandizo cha akulu. Onani chidule cha mankhwala a pa Adult Central Nervous System Tumors Treatment kuti mumve zambiri.

Kusintha kwina kwa majini kumatha kuwonjezera chiopsezo cha chotupa cha teratoid / rhabdoid.

Chilichonse chomwe chimakulitsa chiopsezo chotenga matenda chimatchedwa chiopsezo. Kukhala ndi chiwopsezo sikutanthauza kuti udzakhala ndi khansa; kusakhala ndi zoopsa sikutanthauza kuti simudzakhala ndi khansa. Lankhulani ndi dokotala wa mwana wanu ngati mukuganiza kuti mwana wanu akhoza kukhala pachiwopsezo.

Chotupa chapamwamba cha teratoid / rhabdoid chitha kulumikizidwa ndikusintha kwa majeremusi opondereza a SMARCB1 kapena SMARCA4. Chibadwa cha mtunduwu chimapanga mapuloteni omwe amathandiza kuchepetsa kukula kwa maselo. Kusintha kwa ma DNA amtundu wopondereza chotupa monga SMARCB1 kapena SMARCA4 kumatha kubweretsa khansa.

Zosintha mu majini a SMARCB1 kapena SMARCA4 atha kukhala olowa m'malo (kuchokera kwa makolo kupita kwa ana). Kusintha kwa jini kumeneku ndikotengera, zotupa zimatha kupanga magawo awiri amthupi nthawi imodzi (mwachitsanzo, muubongo ndi impso). Kwa odwala omwe ali ndi AT / RT, upangiri wa majini (zokambirana ndi akatswiri ophunzitsidwa bwino za matenda obadwa nawo komanso kufunikira koyesa kuyesa kwa majini) atha kulimbikitsidwa.

Zizindikiro za chotupa cha teratoid / rhabdoid sichofanana ndi wodwala aliyense.

Zizindikiro zimadalira izi:

• Msinkhu wa mwanayo.

• Komwe chotupacho chapangika.

Chifukwa chotupa cha teratoid / rhabdoid chikukula msanga, zizindikilo zimatha kuyamba msanga komanso kuwonjezeka kwakanthawi kapena masiku. Zizindikiro zimatha kuyambitsidwa ndi AT / RT kapena zina. Funsani dokotala wa mwana wanu ngati mwana wanu ali ndi zotsatirazi:

• Mutu wam'mawa kapena mutu womwe umatha pambuyo posanza.

• Nseru ndi kusanza.

• Kugona kwachilendo kapena kusintha kwa magwiridwe antchito.

• Kutayika bwino, kusowa kwa mgwirizano, kapena kuyenda movutikira.

• Wonjezerani kukula kwa mutu (mwa makanda).

Kuyesa komwe kumayesa ubongo ndi msana kumagwiritsidwa ntchito kuti mupeze (kupeza) chotupa cha CNS chodziwika bwino cha teratoid / rhabdoid.

Mayeso ndi njira zotsatirazi zitha kugwiritsidwa ntchito:

• Kuwunika kwakuthupi ndi mbiri: Kuyesedwa kwa thupi kuti muwone zizindikiritso zaumoyo, kuphatikiza kuyang'ana ngati pali matenda, monga zotupa kapena china chilichonse chomwe chikuwoneka chachilendo. Mbiri yokhudzana ndi thanzi la wodwalayo komanso matenda am'mbuyomu komanso chithandizo chamankhwala adzachitidwanso.

• Kuyesa kwamitsempha: Mafunso ndi mayeso angapo owunika ubongo, msana, ndi kugwira ntchito kwa mitsempha. Mayesowa amawunika momwe munthu amaganizira, momwe amagwirira ntchito, komanso momwe angayendere bwino, komanso momwe minofu, mphamvu, ndi malingaliro zimagwirira ntchito. Izi amathanso kutchedwa mayeso a neuro kapena mayeso a neurologic.

• MRI (magnetic resonance imaging): Njira yomwe imagwiritsa ntchito maginito, mafunde a wailesi, ndi kompyuta kuti ipange zithunzi zingapo zamalo amkati mwaubongo ndi msana. Njirayi imatchedwanso nuclear magnetic resonance imaging (NMRI).

• Lumbar puncture: Njira yogwiritsira ntchito cerebrospinal fluid (CSF) kuchokera pamtsempha. Izi zimachitika poika singano pakati pa mafupa awiri mumsana ndi CSF mozungulira msana ndikuchotsa madzi. Chitsanzo cha CSF chimayang'aniridwa ndi microscope ngati pali zotupa. Zitsanzozo zitha kuwunikiranso kuchuluka kwa mapuloteni ndi shuga. Mapuloteni opitilira muyeso kapena ochepera kuchuluka kwa shuga akhoza kukhala chizindikiro cha chotupa. Njirayi imatchedwanso LP kapena tapu ya msana.

• Kuyesa kwa majini a SMARCB1 ndi SMARCA4: Kuyesa kwa labotale momwe kuyesa magazi kapena minofu kumayesedwa kuti isinthe m'mitundu ya SMARCB1 ndi SMARCA4.

Chotupa cha ana atypical teratoid / rhabdoid chimapezeka ndipo chimatha kuchotsedwa mu opaleshoni.

Ngati madokotala akuganiza kuti pakhoza kukhala chotupa muubongo, biopsy itha kuchitidwa kuti ichotse mtundu wina wa minofu. Pazotupa muubongo, biopsy imachitika pochotsa chigaza ndi kugwiritsa ntchito singano kuchotsa nyemba. Wodwala amayang'ana minofu pansi pa microscope kuti ayang'ane maselo a khansa. Ngati maselo a khansa apezeka, adotolo amatha kuchotsa zotupa zambiri momwe angathere pochita opaleshoni yomweyo. Wodwala amafufuza maselo a khansa kuti adziwe mtundu wa chotupa chaubongo. Nthawi zambiri zimakhala zovuta kuchotsa kwathunthu AT / RT chifukwa chakomwe chotupacho chili muubongo komanso chifukwa chimakhala kuti chinafalikira kale panthawi yodziwika.

Craniotomy: Chotsegula chimapangidwa ndi chigaza ndipo chidutswa cha chigaza chimachotsedwa kuti chiwonetse gawo laubongo.

Mayeso otsatirawa atha kuchitidwa pamtundu wa minofu yomwe yachotsedwa:

• Immunohistochemistry: Kuyesa kwa labotale komwe kumagwiritsa ntchito ma antibodies kuti aone ngati ali ndi ma antigen (zolembera) muzitsanzo za minofu ya wodwala. Ma antibodies nthawi zambiri amalumikizidwa ndi enzyme kapena utoto wa fulorosenti. Ma antibodies atagwirizana ndi antigen inayake munthawi ya minofu, enzyme kapena utoto umayambitsidwa, ndipo antigen imatha kuwonedwa ndi microscope. Mayeso amtunduwu amagwiritsidwa ntchito pothandiza kuzindikira khansa ndikuthandizira kudziwa khansa yamtundu wina wa khansa.

Zinthu zina zimakhudzanso madandaulo (mwayi wochira) ndi njira zamankhwala.

Kulosera (mwayi wochira) ndi njira zamankhwala zimadalira izi:

• Kaya pali majini ena obadwa nawo.

• Zaka za mwanayo.

• Kuchuluka kwa chotupa chotsalira atachitidwa opaleshoni.

• Kaya khansara yafalikira kumadera ena amkati mwa ubongo (ubongo ndi msana) kapena impso panthawi yodziwitsa.

Magawo a Ubwana CNS Atypical Teratoid / Rhabdoid Tumor

MFUNDO ZOFUNIKA

• Palibe njira yokhazikitsira dongosolo lamanjenje lamatenda atypical teratoid / rhabdoid chotupa.

Palibe njira yokhazikitsira dongosolo lamanjenje lamatenda atypical teratoid / rhabdoid chotupa.

Kukula kapena kufalikira kwa khansa nthawi zambiri kumafotokozedwa ngati magawo. Palibe njira yokhazikitsira dongosolo lamanjenje lamatenda atypical teratoid / rhabdoid chotupa.

Kuti akalandire chithandizo, chotupachi chimagawika ngati chatsopano kapena chobwereza. Chithandizo chimadalira izi:

• Zaka za mwanayo.

• Khansa imatsalira pambuyo pochitidwa opaleshoni kuti ichotse chotupacho.

Zotsatira za njira zotsatirazi zimagwiritsidwanso ntchito pokonzekera chithandizo:

• Kuyesa kwa Ultrasound: Njira yomwe mafunde amphamvu kwambiri (ultrasound) amachotsedwa pamatumba kapena ziwalo zamkati, monga impso, ndikupanga ma echoes. Zolembawo amapanga chithunzi cha matupi amthupi otchedwa sonogram. Chithunzicho chimatha kusindikizidwa kuti chiwonedwe pambuyo pake. Njirayi imachitika poyang'ana zotupa zomwe mwina zidapangidwa mu impso.

Chithandizo Chosankha Mwachidule

MFUNDO ZOFUNIKA

• Pali mitundu yosiyanasiyana ya chithandizo cha odwala omwe ali ndi mitsempha yapakatikati ya chotupa cha teratoid / rhabdoid.

• Ana omwe ali ndi chotupa chotchedwa teratoid / rhabdoid chotupa ayenera kukonzekera chithandizo chawo ndi gulu la othandizira azaumoyo omwe ndi akatswiri

kuchiza khansa mwa ana.

• Zotupa zamaubongo muubwana zimatha kuyambitsa zizindikilo zomwe zimayamba khansa isanapezeke ndikupitilira miyezi kapena zaka.

• Kuchiza kwa mitsempha yapakati yamankhwala atypical teratoid / rhabdoid zotupa kumatha kuyambitsa zovuta.

• Mitundu inayi yamankhwala imagwiritsidwa ntchito:

• Opaleshoni

• Chemotherapy

• Thandizo la radiation

• Chemotherapy yamphamvu kwambiri yokhala ndi tsinde lama cell

• Mitundu yatsopano yamankhwala ikuyesedwa m'mayesero azachipatala.

• Chithandizo chofuna

• Odwala angaganize zopita nawo kukayezetsa.

• Odwala amatha kulowa m'mayesero azachipatala asanayambe, asanayambe, kapena atayamba kulandira chithandizo cha khansa.

• Mayeso otsatirawa angafunike.

Pali mitundu yosiyanasiyana ya chithandizo cha odwala omwe ali ndi mitsempha yapakatikati ya chotupa cha teratoid / rhabdoid.

Pali mitundu yosiyanasiyana ya chithandizo kwa odwala omwe ali ndi mitsempha yapakatikati ya teratoid / rhabdoid chotupa (AT / RT). Chithandizo cha AT / RT nthawi zambiri chimakhala pakuyesedwa kwamankhwala. Kuyesedwa kwachipatala ndi kafukufuku wofufuza wothandizira kusintha chithandizo chamakono kapena kupeza zidziwitso zamankhwala atsopano kwa odwala khansa.

Mayesero azachipatala akuchitika m'malo ambiri mdziko muno. Zambiri zamayesero azachipatala omwe akupitilira amapezeka patsamba la NCI. Kusankha chithandizo choyenera kwambiri cha khansa ndichisankho chomwe chimakhudza gulu la odwala, banja, komanso zamankhwala.

Ana omwe ali ndi chotupa chotchedwa teratoid / rhabdoid chotupa ayenera kukonzekera chithandizo chawo ndi gulu la othandizira azaumoyo omwe ndi akatswiri othandiza khansa kwa ana.

Chithandizo chidzayang'aniridwa ndi oncologist wa ana, dokotala yemwe amadziwika bwino pochiza ana omwe ali ndi khansa. Ocologist wa ana amagwira ntchito ndi ena othandizira zaumoyo wa ana omwe ndi akatswiri pochiza ana omwe ali ndi khansa yapakatikati yamanjenje komanso omwe amadziwika bwino pamankhwala ena. Izi zingaphatikizepo akatswiri awa:

• Dokotala wa ana.

• Matenda a ana.

• Wofufuza oncologist.

• Katswiri wa zamagulu.

• Katswiri wa namwino wa ana.

• Katswiri wokonzanso.

• Katswiri wa zamaganizo.

• Wogwira ntchito.

• Geneticist kapena mlangizi wamtundu.

Zotupa zamaubongo muubwana zimatha kuyambitsa zizindikilo zomwe zimayamba khansa isanapezeke ndikupitilira miyezi kapena zaka.

Zizindikiro zomwe zimayambitsa chotupacho zimatha kuyamba asanadziwe. Zizindikirozi zimatha kupitilira kwa miyezi kapena zaka. Ndikofunika kulankhula ndi madokotala a mwana wanu za zizindikilo kapena zizindikilo zomwe zimayamba chifukwa cha chotupacho chomwe chimapitilira mukalandira chithandizo.

Kuchiza kwa mitsempha yapakati yamankhwala atypical teratoid / rhabdoid zotupa kumatha kuyambitsa zovuta.

Kuti mumve zambiri zamankhwala oyambilira omwe amayamba mukalandira chithandizo cha khansa, onani tsamba lathu la Zotsatira Zotsatira.

Zotsatira zoyipa za mankhwala a khansa omwe amayamba atalandira chithandizo ndikupitilira kwa miyezi kapena zaka amatchedwa zotsatira zakuchedwa. Zotsatira zakumapeto kwa chithandizo cha khansa zitha kuphatikizira izi:

• Mavuto athupi.

• Kusintha kwa malingaliro, malingaliro, kuganiza, kuphunzira, kapena kukumbukira.

• Khansa yachiwiri (mitundu yatsopano ya khansa).

Zotsatira zina mochedwa zimatha kuthandizidwa kapena kuwongoleredwa. Ndikofunika kulankhula ndi madotolo a mwana wanu zamankhwala omwe khansa imatha kukhala nawo pamwana wanu. (Onani chidule cha pa Zotsatira Zotsiriza za Chithandizo cha Khansa ya Ana kuti mumve zambiri).

Mitundu inayi yamankhwala imagwiritsidwa ntchito:

Opaleshoni

Opaleshoni imagwiritsidwa ntchito pozindikira ndikuchiza CNS atypical teratoid / rhabdoid chotupa. Onani gawo la General Information pachidule ichi.

Dokotala atachotsa khansa yonse yomwe imawoneka panthawi yochitidwa opaleshoni, odwala ambiri adzapatsidwa chemotherapy komanso mankhwala othandizira ma radiation atachitidwa opaleshoni kuti aphe maselo aliwonse a khansa omwe atsala. Chithandizo chomwe chimaperekedwa pambuyo pa opareshoni, kuti muchepetse chiopsezo kuti khansa ibwererenso, amatchedwa adjuvant therapy.

Chemotherapy

Chemotherapy ndi mankhwala a khansa omwe amagwiritsa ntchito mankhwala oletsa kukula kwa maselo a khansa, mwina popha ma cell kapena kuwaletsa kuti asagawane.

• Chemotherapy ikaikidwa mwachindunji m'matumbo a cerebrospinal, chiwalo, kapena thupi monga pamimba, mankhwalawa amakhudza kwambiri ma cell am'magawo (chemotherapy am'madera). Mlingo wokhazikika wa mankhwala opatsirana khansa omwe amaperekedwa pakamwa kapena mumtsempha wothandizira zotupa zaubongo ndi msana sizingadutse chotchinga chamagazi ndikufika pachotupacho. Mankhwala a anticancer omwe amalowetsedwa mu cerebrospinal fluid amatha kufikira chotupacho. Izi zimatchedwa intrathecal chemotherapy.

• Chemotherapy ikamamwa pakamwa kapena kulowetsedwa mumtsempha kapena minofu, mankhwalawa amalowa m'magazi ndipo amatha kufikira maselo am'mimba mthupi lonse (systemic chemotherapy). Mlingo waukulu wa mankhwala ena opha khansa operekedwa m'mitsempha amatha kuwoloka chotchinga cha magazi ndi ubongo ndikufika pachotupacho.

Thandizo la radiation

Thandizo la radiation ndi chithandizo cha khansa chomwe chimagwiritsa ntchito ma x-ray amphamvu kapena mitundu ina ya radiation kuti iphe ma cell a khansa kapena kuti asakule. Pali mitundu iwiri ya mankhwala a radiation:

• Mankhwala ochiritsira akunja amagwiritsa ntchito makina kunja kwa thupi kuti atumize cheza chaku khansa.

• Njira yothandizira poizoniyu yamkati imagwiritsa ntchito mankhwala a radioactive otsekedwa ndi singano, njere, mawaya, kapena ma catheters omwe amayikidwa mwachindunji kapena pafupi ndi khansa.

Momwe mankhwalawa amaperekera zimadalira mtundu wa chotupa chomwe akuchiritsidwa komanso ngati chafalikira. Thandizo la radiation lakunja lingaperekedwe kuubongo ndi msana.

Chifukwa mankhwala a radiation angakhudze kukula ndi kukula kwaubongo mwa ana aang'ono, makamaka ana omwe ali ndi zaka zitatu kapena kupitilira apo, kuchuluka kwa mankhwala a radiation kumatha kutsika kuposa ana okulirapo.

Chemotherapy yamphamvu kwambiri yokhala ndi tsinde lama cell

Mlingo waukulu wa chemotherapy umaperekedwa kuti uphe ma cell a khansa. Maselo athanzi, kuphatikiza maselo opanga magazi, nawonso amawonongedwa ndi chithandizo cha khansa. Kuika timitengo tating'onoting'ono ndi chithandizo m'malo mwa maselo omwe amapanga magazi. Maselo otchedwa stem cells (maselo a magazi osakhwima) amachotsedwa m'magazi kapena m'mafupa a wodwalayo kapena woperekayo ndipo amaundana ndi kusungidwa. Wodwalayo akamaliza chemotherapy, maselo osungidwa amasungunuka ndikubwezeretsedwanso mwa kulowetsedwa. Maselo amtundu wobwezeretsansowa amakula (ndikubwezeretsanso) maselo amthupi.

Mitundu yatsopano yamankhwala ikuyesedwa m'mayesero azachipatala.

Gawo lachiduleli likufotokoza zamankhwala omwe akuwerengedwa m'mayesero azachipatala. Sizingatchule chithandizo chilichonse chatsopano chomwe akuphunzira. Zambiri zamayeso azachipatala zimapezeka patsamba la NCI.

Chithandizo chofuna

Chithandizo choyenera ndi mtundu wa chithandizo chomwe chimagwiritsa ntchito mankhwala osokoneza bongo kapena zinthu zina kuti ziwononge maselo ena a khansa. Njira zochiritsira zomwe zimayang'aniridwa sizimavulaza maselo wamba kuposa chemotherapy kapena radiation. Chithandizo chomwe akuyembekezerachi chikuwerengedwa pochiza matenda obwerezabwereza aubwana apakati pa teratoid / rhabdoid chotupa.

Odwala angaganize zopita nawo kukayezetsa.

Kwa odwala ena, kutenga nawo mbali pakuyesa chithandizo chachipatala kungakhale njira yabwino kwambiri yothandizira. Mayesero azachipatala ndi gawo limodzi la kafukufuku wa khansa. Mayesero azachipatala amachitika kuti apeze ngati mankhwala atsopano a khansa ndi otetezeka komanso ogwira ntchito kapena abwinoko kuposa mankhwala wamba.

Njira zambiri zamankhwala zochiritsira khansa zimachokera kumayeso am'mbuyomu azachipatala. Odwala omwe amatenga nawo mbali pachipatala atha kulandira chithandizo chofananira kapena kukhala oyamba kulandira chithandizo chatsopano.

Odwala omwe amatenga nawo mbali pazoyeserera zamankhwala amathandizanso kukonza momwe khansa idzathandizire mtsogolo. Ngakhale mayesero azachipatala satsogolera kuchipatala chatsopano, nthawi zambiri amayankha mafunso ofunikira ndikuthandizira kupititsa patsogolo kafukufuku.

Odwala amatha kulowa m'mayesero azachipatala asanayambe, asanayambe, kapena atayamba kulandira chithandizo cha khansa.

Mayesero ena azachipatala amangophatikizapo odwala omwe sanalandire chithandizo. Mayesero ena amayesa chithandizo kwa odwala omwe khansa yawo sinakhale bwino. Palinso mayesero azachipatala omwe amayesa njira zatsopano zothetsera khansa kuti isabwererenso (kubwerera) kapena kuchepetsa zovuta zoyambitsidwa ndi khansa.

Mayesero azachipatala akuchitika m'malo ambiri mdziko muno. Zambiri zamayeso azachipatala othandizidwa ndi NCI zitha kupezeka patsamba lofufuza zamankhwala la NCI. Mayesero azachipatala othandizidwa ndi mabungwe ena amapezeka patsamba la ClinicalTrials.gov.

Mayeso otsatirawa angafunike.

Mayeso ena omwe adachitika kuti apeze khansa amatha kubwereza. Mayesero ena adzabwerezedwa kuti awone momwe mankhwalawa akugwirira ntchito. Zisankho zakuti mupitilize, kusintha, kapena kusiya kulandira chithandizo zitha kutengera zotsatira za mayeso awa.

Kuyesaku kumangopitilira kuchitika nthawi ndi nthawi mankhwala atatha. Zotsatira zamayesowa zitha kuwonetsa ngati matenda a mwana wanu asintha kapena ngati khansa yabwereranso (kubwerera). Mayesowa nthawi zina amatchedwa kuyesa kutsata kapena kukayezetsa.

Njira Zothandizira Achinyamata Omwe Angotulukiridwa kumene CNS Atypical Teratoid / Rhabdoid Tumor

MFUNDO ZOFUNIKA

• Palibe mankhwala ochiritsira kwa odwala omwe ali ndi chotupa chapakati cha teratoid / rhabdoid chotupa.

• Mankhwala othandizira amagwiritsidwa ntchito kwa odwala omwe ali ndi chotupa cha teratoid / rhabdoid.

Kuti mumve zambiri zamankhwala omwe atchulidwa pansipa, onani gawo la Chisankho Chachidule.

Palibe mankhwala ochiritsira kwa odwala omwe ali ndi chotupa chapakati cha teratoid / rhabdoid chotupa.

Mankhwala othandizira amagwiritsidwa ntchito kwa odwala omwe ali ndi chotupa cha teratoid / rhabdoid.

Chifukwa chotupa cha teratoid / rhabdoid (AT / RT) chikukula msanga, nthawi zambiri amapatsidwa mankhwala osiyanasiyana. Pambuyo pa opaleshoni kuti muchotse chotupacho, chithandizo cha AT / RT chingaphatikizepo kuphatikiza izi:

• Chemotherapy.

• Thandizo la radiation.

• Chemotherapy yamphamvu kwambiri yokhala ndi tsinde lama cell.

Matenda azachipatala amachipatala atsopano ayenera kuganiziridwa kwa odwala omwe ali ndi chotupa chatsopano cha teratoid / rhabdoid.

Gwiritsani ntchito kusaka kwathu kwamankhwala kuti mupeze mayesero azachipatala omwe amathandizidwa ndi NCI omwe akulandira odwala. Mutha kusaka mayesero kutengera mtundu wa khansa, zaka za wodwalayo, komanso komwe mayeserowo akuchitika. Zambiri pazokhudza mayesero azachipatala zimapezekanso.

Njira Zothandizira Pachipatala Pazaka zapakati pa CNS Atypical Teratoid / Rhabdoid Tumor

Kuti mumve zambiri zamankhwala omwe atchulidwa pansipa, onani gawo la Chisankho Chachidule.

Palibe mankhwala ochiritsira kwa odwala omwe ali ndi vuto labwinobwino laubwana wapakati pa teratoid / rhabdoid chotupa. Chithandizo chingaphatikizepo izi:

• Kuyesedwa kwachipatala kwa chithandizo chamankhwala.

• Kuyesedwa kwachipatala komwe kumayang'ana chotupa cha wodwalayo ngati majini ena asintha. Mtundu wa mankhwala omwe akulimbikitsidwa omwe adzapatsidwe kwa wodwala umadalira mtundu wa kusintha kwa majini.

Gwiritsani ntchito kusaka kwathu kwamankhwala kuti mupeze mayesero azachipatala omwe amathandizidwa ndi NCI omwe akulandira odwala. Mutha kusaka mayesero kutengera mtundu wa khansa, zaka za wodwalayo, komanso komwe mayeserowo akuchitika. Zambiri pazokhudza mayesero azachipatala zimapezekanso.

Kuti mudziwe zambiri zaubwana CNS Atypical Teratoid / Rhabdoid Tumor and Other Childhood Brain Tumors

Kuti mumve zambiri zamankhwala amitsempha yam'mimba yamatenda a teratoid / rhabdoid ndi zotupa zina zamaubongo aubwana, onani izi:

• Matenda a Ubongo Tumor Consortium (PBTC) Tulukani Chodzikanira

Kuti mumve zambiri za khansa yaubwana ndi zina zothandiza za khansa, onani izi:

• Za Khansa

• Khansa Za Ana

• Cure Search for Cancer ya Ana Tulukani Chodzikanira

• Zotsatira Zochedwetsa Khansa Yaana

• Achinyamata ndi Achinyamata Achikulire ndi Khansa

• Ana omwe ali ndi khansa: Upangiri wa Makolo

• Khansa mwa Ana ndi Achinyamata

• Kusinthana

• Kulimbana ndi khansa

• Mafunso oti mufunse dokotala wanu za khansa

• Kwa Opulumuka ndi Owasamalira